Osteoporosis Online Support Community, hosted by Inspire, brings people with and affected by osteoporosis together online to share experiences and provide support for one another. Now with more than 57,000 members, Osteoporosis Online Support Community is a great source of support and a channel to learn more about living with the disease.Explore and Join NOF’s Community Now
The online community includes blogs, individual web pages, discussions, message boards and more. One of the ways members can expand their social network within the community is by creating a personal profile. To help people find and connect with others in similar situations, Osteoporosis Online Support Community links members by gender, topics of interest and where they live.The discussions are categorized by topic, making it easy for members to find topics that interest them.
Because health issues are private, security measures have been put in place to ensure that members have control over their personal information, such as hiding their full name and email address from others. To prevent inappropriate content, discussions are moderated and there is a community help desk.
Participation is open to people concerned about their bone health, patients with osteoporosis, caregivers, family members and health professionals.
Sign up today – it’s free to join. Once you’re a member of the online community, you can start meeting new people, following popular discussions, joining discussions on topics of interest and sharing information you’d like to pass along to others.
Thanks to our Amazing Volunteer Moderators
NOF appreciates our volunteer moderators for dedicating their time and expertise to answer questions and provide support to members of the Inspire online support community. Meet and learn more about our volunteer moderators below.
Pam is a patient educator and digital health writer who has worked for Remedy Health Media on their osteoporosis web site since 2008. Pam is also a volunteer moderator with the National Osteoporosis Foundation Inspire online community and reaches out to those with osteoporosis who need help and support navigating it at many ages and stages of life.
Pam started out with established osteoporosis, which was detected at age 32, and improved her bone mass greatly with an osteoporosis medication, diet, supplements and exercises. She has had five fragility fractures and one major impact fracture of the spine.
Pam graduated from the University of West Los Angeles School of Law in their Paralegal program and received a Litigation Specialist Certificate from the same university. She has worked at various law firms in the Southern California area.
Pam likes to keep up on new treatments by researching osteoporosis through clinical trials and medical articles from many bone and mineral metabolism and osteoporosis associations and hopes that her work with the Inspire/NOF community will bring assistance to the newly diagnosed, as well as to patients who are already in the process of finding and implementing treatments for bone loss.
Susie is a personal trainer, certified by the American College of Sports Medicine, who has taught thousands of exercise classes to the over-50 age group. More than half of Susie’s clients and class participants have osteoporosis or low bone density. She’s adapted her exercise programs to make them safe and effective for those with bone loss, no matter what their age, level of fitness or physical limitations.
Prior to her personal training career, Susie was an elementary health and physical education teacher. She has a unique perspective on physical activity, from helping young students build their fitness and bone strength to now helping her over-50 clients retain their physical fitness for the beneficial effect that it has on strong bones and fall prevention.
Susie has produced two exercise DVDs; Safe Strength Training for Osteoporosis Prevention and Resistance Training for Osteoporosis Prevention. She also writes a blog and newsletter, Motivation to Move for Healthy Bones, at SusieHathaway.com and answers exercise questions as a volunteer moderator on the NOF online support community.
Lawrence Jankowski, CBDT
Larry is the chief clinical and research DXA technologist for Illinois Bone and Joint Institute, a 90 plus physician multi-specialty practice with a dozen locations in Chicago and the surrounding suburbs. He started clinical imaging as a nuclear medicine technologist in 1978 and has performed bone mineral density testing since 1986 using SPA and DPA.
Larry was certified by the International Society for Clinical Densitometry (ISCD) as a Certified Densitometry Technologist in 1995 and as a Certified Bone Densitometry Technologist in 2009. He is an instructor for the ISCD/International Osteoporosis Foundation (IOF) bone densitometry courses held worldwide and has been an ISCD instructor for more than 15 years. Larry has presented posters at the American Association of Orthopaedic Surgeons, the American Society for Bone and Mineral Research, ISCD and NOF and has co-authored a number of journal articles.
In addition to his clinical and research duties, Larry was the first technologist elected to the ISCD Board of Trustees and served as its first non-physician treasurer from 1997-2001, a position he held twice. He has also served on several ISCD Position Development Conference expert panels and working groups and is a member of the ISCD Facility Accreditation Council. He also volunteers as a moderator for the NOF/Inspire Osteoporosis online support community.
When not at work, Larry enjoys fishing, carpentry and basic automobile maintenance. He also enjoys being a husband to his wife of 32 years and his most recent role as a grandfather.
Ray was diagnosed with osteoporosis in his mid to late 40’s. Prior to treatment, which included medication and basic supplements, he suffered multiple spine fractures. Ray admits that he could still do much better with diet but he does try to eat healthy foods that help contribute to his overall bone health.
Initially, his diagnosis was a shock and seemed to come out of nowhere. Prior to his DXA scan and fractures, he spent his leisure time engaged in a variety of outdoor activities. Ray is a U.S. Navy veteran and a former volunteer firefighter and was always physically active. The multiple spine fractures were more than enough, however, to put him on permanent disability and living with pain and limitations is certainly a challenge. Ray is proud to give back by serving as a moderator on the NOF/Inspire online community. He does his best to separate “fact from fiction”, especially with exaggerated claims of cures and false information about various treatments. In addition to his role as a moderator, he enjoys woodworking, particularly wood art, and playing music.
Burta Guray Samli
Burta is originally from Izmir, Turkey. After graduating from the Middle East Technical University with a Bachelor of Science degree in Statistics, she worked as a banker for 11 years in Turkey, Switzerland and the United Kingdom until 2007.
She has lived in the United States since 2011. Burta has always been passionate about health and alternative medicine. She received a “American Association of Drugless Practitioners” certificate from the Institute of Integrative Nutrition in 2012. In addition, she became a clinical Eden Energy Medicine practitioner in 2017 and an Eden Energy Medicine certified teacher in 2016.
In 2018, Burta was diagnosed with osteoporosis and has been managing her condition with good care thanks to the help of medical providers. She also does her best with physical therapy, walks regularly and follows a good, healthy diet.
Burta’s goal is to help others to better their health through awareness and education. She strongly believes that we will always be stronger together and our overall health can improve tremendously with food, spirituality, physical fitness and our day-to-day schedule and lifestyle changes.